Suslev23's Story

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"I am 28 years old, diagnosed at 27 in January 2017. ER/PR+, HER2- mets to lungs, liver, spleen (random!), chest wall. I had 7 rounds of chemo, 4 AC and 3 T; doctor decided not do last round as she didn't think it would shrink it smaller. However they were happy with results! Started letrozol and Lupron shot in May. Last scan showed growth and high suspicions of lymphangitic carcinomatosis. However, I wasn't symptomatic so doc decided to give tamoxifen a shot JUST in case it works. I think she likes to save treatment to keep our tool box full since I'm in this for long haul. Anyway I got a cold...yadda, yadda...now I'm very symptomatic. Short of breath, coughing.... Soooo, plan B is to start xeloda.

"My doctor has [a] tendency to never show concern, so I left my original appointment thinking it was bad but not terrible news. Then of course Google 'lymphangitic' blah, blah....

"[...] I am beginning to come around to the idea that maybe it's time to stop working and spend time with my family, etc. Not giving up, but just want to spend my time with my poor family! I feel the worst for them."

-- Suslev23, diagnosed metastatic in January 2017

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