- Question from Elise: How does a survivor get involved with a study or a survey like the one you mentioned about Post-Traumatic Syndrome?
- Answers - Lillie Shockney One source is to call 1-800-4-CANCER to find out what clinical trials are available throughout the US. You can also contact cancer centers in your geographic region and inquire as to what studies are available, letting them know specifically what your interests are; for example, a cognitive functioning study or a 'chemo brain' study, as was mentioned before. It is important that if you are pursuing this type of research to make sure it is true clinical research and not what I call 'hocus pocus' medicine. I mention that because I have breast cancer information in my personal profile on the internet, and I receive emails weekly inviting me to buy what I think is snake oil, to prevent my breast cancer from returning, or asking me to participate in a study that is not approved by the NCI.
- Gwen Darien Lillie, do you know of any current studies that are for breast cancer survivors in terms of exercise, cognitive functioning, etc.?
- Lillie Shockney There was a cognitive functioning study being done at Johns Hopkins currently by Dr. Antonio C. Wolff. We have recently completed an exercise study with patients after completing chemotherapy to see about control of their symptoms of fatigue. But again, an effective way to get good information about studies such as this would be to contact the number I mentioned, or to directly call a cancer center and inquire. There certainly is an increase now in studies in the area of complementary medicine with more grant money being available for performing clinical research in this area.
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