Managing Lymphedema

You can usually control lymphedema by practicing good care and following basic guidelines.

The health care professionals who specialize in the management of arm lymphedema are physical medicine doctors (physiatrists), physical therapists, and occupational therapists. But don't assume that anyone in these specialties is an expert in treating lymphedema. Ask about experience and references before you let anyone work on your edema problem.

Most metropolitan areas have occupational or physical therapists with practices dedicated to managing the physical, psychological, and activity-related side effects of breast cancer treatment. If you can't find a therapist who specializes in breast cancer, look for a general occupational or physical therapist in a rehabilitation center or department who has experience taking care of women with breast cancer.

The National Lymphedema Network (NLN) has lists of specialists all over the world on its Web site at www.lymphnet.org. The NLN also has a lymphedema HOTLINE at 1-800-541-3259 or 510-208-3200.

Non-urgent care for lymphedema takes many forms. All therapies for chronic lymphedema require a commitment to a modified lifestyle.