Community
Recommended Links
Organizations
- American Cancer Society
- The American Cancer Society (ACS) is a nationwide organization dedicated to cancer research, education, advocacy, and support. ACS offers everything from smoking cessation programs and volunteer-based support in your community to the chance to get involved in research on treatment and survivorship.
- The Breast Cancer Research Foundation
- The Breast Cancer Research Foundation is dedicated to prevention and finding a cure for breast cancer. They have raised over $440 million in support of clinical research worldwide, contributing to many diagnostic and treatment breakthroughs.
- BreastFree
- BreastFree is an information resource for women who are considering or who have decided to have no reconstruction after mastectomy. Read about womens' decisions and experiences, see photos of women who chose to not have reconstruction, and get advice and tips on living breast-free.
- CancerCare
- CancerCare is a national nonprofit organization whose mission is to provide free professional help to people with all cancers and their loved ones through counseling, education, support groups, and direct financial assistance.
- Cancer Hope Network
- Cancer Hope Network connects those currently undergoing cancer treatment with trained volunteers who have experienced a similar diagnosis and treatment. Their free, one-on-one support is also available to family members.
- Fox Chase Cancer Center
- Fox Chase Cancer Center offers resources to help parents talk with young children about cancer, including a video, Talking About Your Cancer: A Parent's Guide to Helping Children Cope; free books through the Louise S. Mauren Book Fund; and more.
- Imaginis
- Imaginis is a medically reviewed women's health information resource focusing on women's cancers, heart disease, stroke, multiple sclerosis, and more.
- Living Beyond Breast Cancer
- Living Beyond Breast Cancer (LBBC) is a nonprofit educational organization committed to improving the quality of life of women affected by breast cancer. In addition to their website, LBBC offers the Survivors' Helpline, educational conferences, a quarterly newsletter, consumer focused booklets, outreach to medically underserved women, and more.
- MyLifeLine.org
- MyLifeLine provides an easy-to-use, personalized online platform that allows patients to create a web support community. Through MyLifeLine, patients can give updates to family and friends, share photos, provide educational links, assign a friend to delegate tasks, get help with website management, and much more.
- The National Breast Cancer Coalition (NBCC)
- The National Breast Cancer Coalition (NBCC) is a grassroots effort dedicated to ending breast cancer by 2020 through action and advocacy. NBCC is coordinating research, funding, access to information, and advocates to reach their goal.
- The National Coalition for Cancer Survivorship (NCCS)
- The National Coalition for Cancer Survivorship (NCCS) was founded by cancer survivors to advocate for quality care for everyone diagnosed with cancer. NCCS advocates for cancer patients on the national level and encourages cancer patients to be their own advocates, offering free educational resources.
- National Lymphedema Network
- The National Lymphedema Network provides information on the prevention and management of lymphedema and supports research into the causes and possible alternative treatments for this condition.They offer educational resources and can help those with lymphedema find quality care.
- Sharsheret
- Sharsheret is an organization that offers support to Jewish women who have been diagnosed with breast cancer or who have a higher genetic risk of developing breast cancer. Sharsheret helps women connect with peers who are in a similar situation and learn about genetic risk, and addresses the information needs of Jewish women with breast cancer in a culturally relevant and sensitive manner.
- Stand Up To Cancer
- Stand Up To Cancer is a research-funding organization, focused on innovation and collaboration between researchers.
- Susan G. Komen for the Cure
- Susan G. Komen for the Cure raises funds for research, education, and outreach through community events such as Race for the Cure. Komen has affiliates throughout the United States and internationally.
- Young Survival Coalition
- Young Survival Coalition (YSC) focuses on the unique issues and challenges faced by women 40 and younger diagnosed or living with breast cancer. Through peer-to-peer support, conferences, advocacy, and education, YSC reaches at-risk women, young women with breast cancer, and the medical community.
Government Resources
- Centers for Disease Control
- Learn about breast cancer disease surveillance, current studies, and CDC-supported community programs.
- U.S. Food and Drug Administration
- Learn the latest information on drugs approved for treating breast cancer and managing side effects.
- U.S. National Library of Medicine
- The National Library of Medicine includes comprehensive databases of medical information such as PubMed/MEDLINE and ClinicalTrials.gov.
- The National Cancer Institute
- Learn about research being conducted by the National Cancer Institute and information on clinical trials.
Complementary Therapy
- Integrative Medicine Center at MD Anderson Cancer Center
- The Integrative Medicine Center provides information on complementary therapies, including current research, how to integrate complementary therapies into treatment, how to find a provider, and more. The Center offers both information for healthcare professionals and patients.
Support and Advocacy
- American Psychosocial Oncology Society
- The American Psychosocial Oncology Society raises awareness of and addresses the psychological needs of people affected by cancer. They offer a helpline cancer patients and caregivers can call to get referrals and recommendations for counseling services.
- FORCE: Facing Our Risk of Cancer Empowered
- FORCE is an organization aimed at educating and supporting women and families with a hereditary risk of breast and ovarian cancer. They offer local outreach, webinars, a helpline, educational materials, and more to help women manage their risk.
- Mothers Supporting Daughters with Breast Cancer
- Mothers Supporting Daughters with Breast Cancer offers free booklets and peer-to-peer support services to give emotional support to mothers who have daughters battling breast cancer.
News and Information
- TheBreastCareSite.com
- TheBreastCareSite.com is sponsored by the makers of Amoena breast forms to provide post-surgery women with information on breast forms, intimacy, body image, and lifestyle, as well as surgical and other treatment options.
- Johns Hopkins Breast Center
- Johns Hopkins Breast Center provides information on choosing treatments and doctors, Ask an Expert questions and answers, second-opinion options, a Patient Bill of Rights, and more.
- OncoLink
- OncoLink is a free cancer information resource maintained by the University of Pennsylvania. Find important information the latest treatments, research, and more.
- Vital Options International
- Vital Options International is a nonprofit organization that produces The Group Room, a video discussion series featuring interviews with leading cancer healthcare providers and researchers. They collaborate with cancer organizations and societies worldwide.
General Health News
- HealthyWomen
- HealthyWomen is one of the leading resources for women's health information, from reproductive and sexual health to heart disease. A nonprofit organization, HealthyWomen offers information on hundreds of health topics on their website and printed materials in both English and Spanish.
- Womenshealth.gov
- Womenshealth.gov is operated by the Office on Women's Health of the U.S. Department of Health and Human Services. They offer online information, publications, and programs to improve women's health nationwide.
