Members With Metastatic Breast Cancer

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While October 13 is Metastatic Breast Cancer Awareness Day, we want to make sure to recognize, acknowledge, and honor these very special members of our Breastcancer.org Community each and every day of the year. We've asked some members to share their stories of living with metastatic disease to offer support and encouragement to others facing this diagnosis.

angelao

"Although the breast cancer primarily metastasized to my bones, it also caused a significant loss of my voice, which is devastating to a [speech-language pathologist]." Read AngelaO's story...


annabill

"All the while I was having chemo I was told the gold standard at the time was a total mastectomy. It had to be done for the best outcome. To me, having stage IV cancer, 'the horse was already out of the barn.' I just felt a mastectomy was not right since the cancer was way beyond the breast." Read AnnaBill-74's story...


auroaya

"I log in to the forums everyday and this helps me psychologically not to feel alone in my fight against cancer, not to give up, and realize that other patients suffer even more than me. I try to share with them thoughts of hope that also helps me not to feel sorry for myself or depressed." Read auroaya's story...


babs

"Since I turned 40 I've always been nervous about developing breast cancer. My mom was diagnosed at that age and died shortly after her 42nd birthday. I was diligent." Read Babs6287's story...


annabill

"It is such a devastating diagnosis not just for me but for my loving husband and for my entire family. I honestly thought I had months to live. It has been 10 months now...." Read Bebicita's story...


carolina

"August 31, 2011, my doctor was suspicious of a pea-sized lump on my mastectomy side. She sent me for an ultrasound and biopsy. Results were positive for recurrence." Read CarolinaGirl_jlo's story...


annabill

"Knowing I have incurable cancer has made me finally learn to not sweat the small stuff. Most days I feel lucky and grateful but there are many days (and especially sleepless nights) when I struggle with hurt and anger over why I have this awful disease." Read cenglish62's story...


kathy

"I am one of those people who always did everything you were supposed to do. I got my yearly mammograms, I did self breast checks regularly.... I have zero risk factors and yet here I am with stage IV straight out of the gate. It's a hard thing to accept." Read Chattykat40's story...


coopdizzle

"What helps me through it is my family and friends. I am so thankful for my doctors who have never for one second blown me off due to my age. I think because I've been so open about what's going on, people want to help." Read Coopdizzle's story...


annabill

"AI have been positive of mind throughout [...], I have dark days but it is what it is. The mind boggles at what I have been through in the last year." Read Cosmogirl's story...


AH

"I have continued to teach first grade, travel, and enjoy my life. In that time, I became a grandmother, danced at my younger daughter's wedding and climbed the Harbour Bridge in Sydney, Australia. And yet, the thought that I have MBC is always there." Read exbrnxgrl's story...


faithhope

"Emotionally, I was in shock, unable to get my mind around what Stage IV/metastatic breast cancer is, if no cure, what are treatment options, what questions should I be asking my oncologist, and what am I to expect daily, monthly, in the next year?" Read Faith_Hope's story...


annabill

"Something odd had shown up on the brain MRI, but they weren't sure what. My oncologist didn't think it was a met but was concerned that I was suffering a brain bleed." Read Goodie16's story...


heatherrichardson

"My oncologist said, 'DON'T WORRY, IT HASN'T SPREAD.' On June 7, we got news that I was Stage IV, IDC, triple positive and super aggressive." Read heatherrichardson's story...


hopeful

"I went for my five year check up and my tumor markers were slightly elevated, so the oncologist did a chest x-ray and brain scan. The brain scan came back clear, but the chest x-ray showed pneumonia." Read hopeful34's story...


terri

"Due to having stage IV, I know my medical team will watch me closely. I have PET scans every 3 months if anything shows up on them and every 6 months if they are clean. I know my doctors can address issues early when they arise, which has kept me alive and well for 6 years now..." Read ibcmets's story...



annabill

"I celebrated 5 years cancer-free in late December after having a negative mammogram on 12/28/2015. About a week later, I noticed a supra-clavicular enlarged lymph node on my right side." Read ih8cancer's story...


jessica21122

"Until this happened in February I never even knew what metastatic breast cancer was and I know that is what a lot of people say when they find out they have it." Read jessica21122's story...

jkelsey

"What helps me most is knowing I have an amazing oncologist. She is very dedicated to her patients and I know she will keep fighting for me and taking great care of me. I also have an amazing family and group of friends." Read jkelsey4's story...


jillianclaire

"It wasn't until I had the PET scan that they finally found the source. And 3 days after I was diagnosed, I turned 32." Read Jillianclaire's story...


judo

"At the start of 2015, I wasn't feeling too well but cancer was the last thing on my mind. My first symptom was on the 4th or 5th of January 2015. I felt a slight flutter (like an electrical current) over my left breast which I thought strange." Read Judo's story...


annabill

"Eleven years ago, on a routine mammogram, it was discovered I had cancer in my right breast. [...]This April, I was diagnosed with a recurrence." Read JudyKRN's story...


AH

"Then one day I was washing my hair and felt this little lump on my scalp. It didn't hurt, it was just there. Over the next six weeks or so it did not change in any way. I decided I better go to a dermatologist and see what they thought." Read justjudie's story...


annabill

"I was very fatigued, working full-time with a long commute in SoCal that wiped me out and sleeping the minute I got home. At some point it took me three evenings to change the sheets on my bed. " Read laure999's story...


laureng

"I noticed a wrinkled surface at the corner of my left breast scar after [mastectomy]. I inquired, but was told it was likely a stitch left behind given that surface response. " Read LaurenG's story...


leftfootforward

"I would tell people to always listen to their guts and to never be afraid to ask questions. I don't read statistics, as they are outdated for some and really don't mean anything." Read Leftfootforward's story...


annabill

"An X-ray revealed my left lung had collapsed. Then the CT showed the tumor on my right breast -- so large they kept asking if I had an implant (8.5cm)!" Read lifer's story...


lita

"...My husband and I went back to my doctor and asked for a scan – I was in a wheelchair and could hardly speak because of the pain. Once again, she refused. 'It's not going to change the original diagnosis. You just need more physical therapy and stronger meds.'" Read Lita57's story...


marcia

"One day on the way to the dentist in early 2012, I had feeling like I was about to have a stroke while driving. At the dentist's I had high blood pressure. They held me all day in the ER. I was about to walk out, but something told me not to." Read MarciaM's story...


marynp

"I went to my PCP and mentioned my history of the cancers but she felt that since it had been over 10 years since my original breast cancer diagnosis recurrence was unlikely, so she encouraged me to get more exercise." Read Marynp's story...


annabill

"My story is so upsetting because I did what I was supposed to do and feel like I was failed by my doctor. I found the lump in my breast in January 2014. I immediately went to the doctor with my concern." Read mdillard04's story...


miriam

"I may have Stage IV cancer, but I'm alive, functioning well, and trust that God walks me through all the tough days and good days of my life. I trust that I can acknowledge that I might have difficult times ahead, but I know He will be my comfort, the source of daily grace for living, and my hope of heaven." Read MiriamWillits's story...


mirryp

"Last fall I ran a half marathon and am training for my second since diagnosis this fall. I will run up a mountain in ID next week in a trail race accompanied by both my adult children and my granddaughter." Read mirryp's story...


annabill

"Thanksgiving day 2013, my daughter and I put the turkey in the oven and went Christmas shopping. When we returned home, I had a seizure in the driveway." Read Mom_of_3's story...


nbnotes

"I am glad that I know so that we could address it and while I don't like living with the cloud over my head, I do like that I know to live life to the fullest now and appreciate everything in the moment." Read nbnotes's story...


ellen

"The most significant support has been from others traveling the same path. To sit with others who 'get it' and share our greatest fears, laugh and cry has been so important. I have great friends and family, but it has been others with metastatic breast cancer who have been my strength." Read Nel's story...


annabill

"My first thoughts were that I had cancer again, unfortunately, but would get treatment like before, although probably having to do chemo this time, and move on with life. I felt shocked and devastated with the news but not nearly as devastated as a few days later when I began to do my own research online and found out for myself that this is not curable and could kill me!" Read NMJanet's story...


partyoffive

"The worst part for me is the lack of control and uncertainty and how that impacts my children -- they know I have a terminal disease but, as we say in my house, 'Suck it up, buttercup!' We just keep moving forward." Read Partyoffive's story...


paula

"I look okay and I feel okay-ish. Bone pain, fatigue, and weight gain, but nothing I can't manage. But I suspect some people think I am fibbing about the cancer because I don't look sick! I still run and hang upside down in the park!" Read PaulaAmy's story...


pearlady

"I honestly have more energy and work longer hours than many of my friends who don't have cancer. I really attribute my long period of stability to the complementary treatments that I have as well as standard treatments." Read pearlady's story...


annabill

"All the things I was complaining about were signs of hormone deficiency. I now know they are also symptoms of cancer. In my defense, I did ask her if bioidentical hormones caused breast cancer. She said, 'Definitely not. There have been no studies showing that they do.'" Read Raine-Wells's story...


annabill

"Cancer touches everything I do. I can pretend to be normal, until the next scan comes up, and then it hits me again: this is my life now. Sometimes it is very lonely, because even if you have a supportive family, as I do, parts of the journey are entirely my own." Read raro's story...


springlakegirl

"I believe we are in this world together for a reason. We need each other. Extreme challenges often bring out the best in people, and I am forever changed by the love and thoughtfulness of those who prayed for me, took care of my children, brought meals, and visited me." Read Springlakegirl's story...


annabill

"In February 2015, I had a mammogram after knowing I had a lump near my nipple for several months. Because I had no insurance at the time I waited. By the time I got the mammogram they immediately knew I had breast cancer." Read sqrlady's story...


annabill

"I don't share my story often because I have 6 children, 1 daughter & 5 sons. Two boys still live at home, so it seems to work for the men in my life not to talk about the Big C." Read Sue2009's story...


annabill

"I think I cried the entire month of April. I am now on depression medications which work wonders, because I was so miserable thinking about not being here...." Read Tee510's story...


texasrose

"The best way my oncologist described it is, I 'have a bear that has come out of his cave. We need to put him back in his cave, he will not go away, but he can hibernate, and when he decides to come out again we do what is needed to get him into hibernation once again.'" Read Texasrose53's story...


thedivinemrsm

"I’ve packed a lot of living into these past few years. I’ve traveled more, like going to NYC, Vegas, the Grand Canyon, a cruise to the Bahamas and hope to do more. I’ve been to concerts and new restaurants, still enjoy shopping, flower gardening, great TV and excellent books. I do more of the things I love and stopped doing things out of obligation. ...I want to live a full life because I do not want breast cancer to rob me of living." Read TheDivineMrsM's story...


travelntext

"Mentally and physically it was tough, the first year after being declared in remission, but after some time I stopped worrying about the cancer coming back despite what the statistics say." Read travelnsurvivor's story...


Want to share your story? Email community@breastcancer.org or join our Discussion Boards.



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