On Wednesday, May 19, 2004, our Ask-the-Expert Online Conference was called Sleep or Sex? You Can Have Both! Su Carroll Kenderdine, M.D. and Marisa Weiss, M.D. answered your questions about how to maintain sexual intimacy during and after treatment, what to do for loss of libido and vaginal dryness, ways to reduce the fatigue related to breast cancer, and more.
Question from Towi-from-Norway: I have a high grade of cancer-related fatigue, and one of my biggest problems is to find a normal balance between rest and activity. Sex is one of the "activities" I struggle with. After a sex act, it feels like I need a week holiday. Is it the fatigue or only lower libido?
Question from Rachel: I can't stand my body any more. I'm overweight. I'm dry as a bone. I have no desire. I have no energy. Where do I start?
Question from Website Question: My loss of libido during and especially following BC treatment has been extremely difficult for my partner and it's jeopardizing our relationship. I was 39 years old and pre-menopausal at diagnosis. I had eight rounds of chemotherapy and have been on tamoxifen ever since. I still menstruate. It has been four years, but my lack of libido continues. Can you give any guidance?
Question from Susan: I am experiencing sleep and sexual problems. I wake during the night as much as seven to ten times. Often, I feel tired the next day. I awake because of hot flashes and being thirsty. When having sexual relations with my husband, due to the dryness, I experience a lot of pain. What can I do for both of these conditions?
Question from Helen: I, age 56, have had estrogen dominance in my perimenopause, lots of heavy vaginal bleeding, now diagnosed with LCIS (lobular carcinoma in situ, an overgrowth of cells generally considered a pre-cancerous condition). My fear is that touching breasts and circulating hormones from sex will stimulate pre-cancer cells/cancer cells.
Question from Website Question: I have had numerous UTIs (urinary tract infections) while undergoing chemo (Taxol/Gemzar) for metastatic cancer. The usual treatment is antibiotics after a urine culture. Does intercourse or oral sex contribute to these infections or is it because my immune system has been compromised?
Question from Website Question: I was told if one is getting chemo that sex is not permitted unless a condom is worn. Is this true?
Question from Website Question: Is there an average time after treatment for breast cancer that women regain adequate sleep and resume satisfying sex before we need to consult various doctors? How much time is "enough time"?
Question from Website Question: I am on Lupron and Arimidex. I seem to have lost significant sensation in my vagina/clitoris. Is this possible? Will normal sensations come back? I've only been on it for a few months. I am using the Estring and Astroglide, which is helping, but it's not the same as the real thing.
Question from Susan: I am seven months out of treatment. I received four treatments of chemotherapy and six-and-a-half weeks of radiation. While I am doing somewhat better with fatigue, I am still not back to a more normal energy level. I am exercising three to five times weekly and take some vitamins. Is there anything more I can do to increase my energy and endurance?
Question from Website Question: I have not slept through the night since I was diagnosed with breast cancer 18 months ago. The best remedy I have tried is Phenergan (a codeine-based cough medication) which improves my sleep, but I still wake up at least three times per night. I am concerned that my body will get used to the Phenergan.
Question from Tootsie222: I have trouble having an orgasm. What should we do?
Question from Annesenchack: I am considering having my ovaries removed now that my breast cancer treatment is over. I am only 32 and have only been married for 4 years. I am concerned at the effect having my ovaries removed will have on our sex life. Can you provide some help?
Question from Serena: What about those of us who don't have a partner now? I'm so anxious about getting back to dating, much less sex, since breast cancer and surgery. Any suggestions?
Question from Website Question: I am having a mastectomy and reconstruction next week and want some suggestions on telling a prospective partner.
Question from Website Question: What advice do you have for a lesbian couple where one has just finished chemo and radiation (43 years old) and the other one has also gone through a different kind of stress (caretaker) and we have a three-year-old? Our sex life and intimacy has gone to the lowest level in our relationship. We don't sleep well or enough and this is also taking its toll.
Question from Website Question: Any word on a women's Viagra? Really, is there anything ER/PR+ women can take? Is anyone looking into it? My oncologist just shakes his head; meanwhile my sex life is about dead.
Question from Website Question: I am a public health professional specializing in minority health. Are there data or research on how the issue of sexuality after breast cancer specifically affects non-white women? What has been your experience in helping non-white women navigate this situation?
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