On Wednesday, February 19, 2003, our Ask-the-Expert Online Conference was called The Doctor-Patient Relationship. Jennifer Griggs, M.D., M.P.H. and Marisa Weiss, M.D. answered your questions about how to find the right doctor for you, and how to create and maintain a good, open relationship with your doctor so you can be sure to get all the care and information you need.
Question from Fay: When I go to my doctor, I always take a list of questions with me because I don't want to forget anything important. I get the feeling from my doctor that he thinks I am making up some of my symptoms because I have them written down. Am I doing something that offends doctors?
Question from Maleisha: Would it help to let the doctor's office know when I'm making my appointment that I have a lot of questions to have covered? So they can book more time?
Once you've put your tailored list together, then it's fine to call the office ahead of time and let them know you have some questions to sort out. You may even want to fax your list of questions to the doctor's office prior to your visit. This can be particularly helpful if one of your questions is about a pending test. That way, the office staff will know to make sure they have all test results back in your chart by the time you come in.
Question from Cid: Doctors seem worried that anything that does not go just as planned will be part of a lawsuit. They get defensive about honest questions. How do we get around that?
Whenever someone doubts that you care about them, or questions your commitment to them, it is very uncomfortable. Trust is the foundation of the doctor-patient relationship, and like all relationships, it needs to be cared for, reinforced, and worked on over time. There are ways to ask direct questions, even about uncomfortable topics, and still maintain a good feeling.
For example, if one of my staff members is rude to a patient of mine, I definitely want to hear about it, although bringing it up to me can feel uncomfortable for the patient. In particular, she may be worried that if she says something, that staff member may not provide her with the best care possible, or that the staff member might express anger towards the patient. I try to create a relationship with my patients that will allow them to report things like that to me without feeling defensive, and without me feeling defensive. It's all about being committed to the best care possible.
You could say to your doctor, 'I know you're committed to my care, and so I want you to know that I had an interaction with your staff member that didn't feel good to me. I'm bringing this to your attention because I know you'd want to address it. Thank you for handling this with care and discretion so this staff member doesn't get angry with me.' This is just an example of something that may feel difficult to talk about.
Sometimes the best way to approach a doctor is to preface questions by saying something like, 'I trust your opinion about these matters, and I would really appreciate it if you could answer some questions I thought about after our last appointment.' When patients approach me that way, I know they trust me and that they are coming to me not to challenge me, but to feel fully informed about their condition and its treatment. Just those few words of preface can make the interchange more positive.
Question from Maja: I have a dilemma. I am seeing four doctors: A surgeon, a plastic surgeon, an oncologist, and my primary care physician. How do I coordinate between them all?
You may be scheduling a large number of doctor visits, especially early in your treatment. If you feel overwhelmed, feel free to move an appointment to a more convenient date. For example, your medical oncologist may want you to come back for a follow-up visit a month after finishing chemotherapy. S/he wants to make sure that you're recovering from treatment. Of course, by now, you may be in the middle of radiation. Feel free to move your medical oncology appointment so it coincides with the conclusion of your radiation.
For example, a month after radiation, see your radiation oncologist, and three months after that, see your surgeon. Three months after that, see your radiation oncologist again. During that time, if you also received chemotherapy, or if you are taking hormonal therapy, your medical oncologist will also want to see you. Talk to your doctors and ask them to help you coordinate a follow-up plan that ensures you're taken care of without spending your whole life in the hospital.
Question from Wednesday: I want to try natural therapies in conjunction with my traditional treatments, but my doctor is not very receptive. How can I make him understand that I need to know I am doing everything I can to beat this?
In addition to that, physicians don't want their patients to take anything that might interfere with chemotherapy or radiation therapy. For instance, we usually advise women to avoid antioxidants while undergoing chemo and radiation. Cancer treatments work through oxidation, and protecting cancer cells by taking antioxidants might decrease the likelihood of benefiting from treatment.
Things that make doctors uncomfortable include the use of concentrated supplements, vitamins, and herbs. Without solid data that proves their value or their safety when used during treatment, your doctor will probably want you to avoid such things.
Question from Sami: The only thing that keeps me going back to my current doctor is that I love and trust his nursing staff. They are so kind and considerate. Am I making a mistake staying with him?
Question from Sharni: I am not coping very well with my treatment. When I mention it to my doctor, he glosses over it, and is interested only in my next test results. How can I get him to understand that I need help?
Then step back a bit and allow him to respond. Give him a chance to re-orient his approach. If you are satisfied with his ability to do that, stick with what's working. If you feel that the relationship can't adjust to meet your needs, then maybe it's worth seeking a second opinion, or shifting your care to another doctor who can provide you with what you need.
Question from Bella: Once I commence treatment with one doctor, am I obliged to continue with him or her?
Question from Sabrina: I was told that if I change doctors my insurance might be jeopardized. Can they refuse to pay out if I change doctors?
Question from Lorena: I am a Stage III breast cancer survivor. My doctors tell me my time is limited. Do you think doctors should talk that way to me when I am feeling great?
Sometimes physicians think patients haven't been told what we consider 'the truth.' We sometimes feel it's our responsibility to make sure that patients know the statistics and how to prepare. On the other hand, if you feel you have been fully informed, you should be encouraged to view your disease and your life in a way that most fits your own style and values.
As you move along, making various decisions, it's important to know that you can always re-evaluate those decisions. That's one of the reasons you see your doctors on a regular basis. A decision you made in the past may change with future visits. But all along the way, it's important to promote the quality of your life, and your doctor should help you embrace the goodness and joy that you can experience, despite the reality of the disease.
Question from Maybe: Are there specific things I should be asking so that my doctor and I can develop an open understanding?
Question from Justine: What sort of training do doctors get in how to be sensitive when dealing with people? Do you think more should be done to educate them in how they talk with patients?
In our training program, physicians in training spend a great deal of time with various doctors to learn different styles of talking with patients. It's rewarding to see people learning how to speak with their patients in the most sensitive ways. I absolutely do believe that these are learnable and teachable skills, and that greater emphasis should be placed on these subjects.
Physicians are bombarded with so much information—more and more as the pace of medical science quickens. It's important to remember that most of the healing happens in a quiet room with two to three people listening to each other and respecting each other.
This type of conversation sets things up in a way that's most likely to meet your needs. It's also a positive way to teach your doctor. By saying you need his sensitivity; you're implying that he has sensitivity. You can also do things to make the conversation more intimate. You could pull your chair a little closer, or you could put your hand on his arm and say, 'Thank you, but today I really need to address something else.' There are a lot of little things one can do in a relationship to make the situation more comfortable.
Question from Joann: How about dictating and giving patients a written report, letter, memo, or e-mail, to state and explain findings? That way, things don't get forgotten, as they can with verbal information.
On the other hand, you can bring a portable recorder with you and tape your doctor's visit. Some doctors find this a little off-putting. Sometimes we feel such information could be used against us in a court of law. Reassuring your physician that this is the best way for you to listen to and process a great deal of information should put him or her at ease.
Question from Colleen: Without my knowledge, my breast surgeon called my plastic surgeon and asked him not to add the implant to my remaining breast. I then went to a different breast surgeon for another opinion and received permission to move forward. I'm supposed to go back to the original surgeon that did the mastectomy, but I feel differently about her now.
Question from IJG: How do doctors feel about e-mail communications with patients?
I have also received e-mails from patients who want to change their appointments—and I don't even have privileges on our computer schedule! On the other hand, e-mails can be a quick way to let a doctor know that you've canceled an appointment because you're going out of town. Such an e-mail could help the doctor know what's going on with you if you miss an appointment.
It's important to remember that a doctor who receives an e-mail doesn't have your chart with him/her, so bypassing the secretary and her nurse may actually compromise the quality of your care, as the doctor may not have all the necessary information at his/her fingertips. I would advise you to ask your doctor how s/he feels about e-mail and in what case e-mail would be the best method of communication.
Question from Colleen: What if I have a problem with my breast surgeon, but not with my plastic surgeon?
Question from Mile: I'm a marathon runner, and I want to continue training during chemo and radiation. My oncologist says I really have to cut back, but I heard that exercise is good for breast cancer patients. We're really at an impasse.
Question from Maria: My surgeon wants to do a full lymph node dissection. I want the sentinel lymph node procedure. Why should I lose all my lymph nodes if I don't have to? Should I switch surgeons?
Question from Diorella: I don't have health insurance, and my breast tumor was found at a local clinic during a free community health screening. I don't have a regular doctor, and I don't know where to turn.
There are also some resources listed in our Frequently Asked Questions section that can be helpful with financial issues.
Question from What's For Dinner: My oncologist is a great guy, and I like him a lot. But I was recently diagnosed with a recurrence, and I'm wondering if I should go to a different doctor this time. My doctor is about 60 years old, and I'm not sure he's really up on the latest research.
Question from Folderol: My doctor never returns my calls. She's a great doctor, and I feel like she's giving me good treatment, but I really want someone who's more responsive. What should I do?
If you have told people in the office that you want to speak specifically with your doctor, and she is not returning your calls, this is an issue you should bring up with her in person when you can feel calm. We always want to feel as if we're our doctor's only patients. When we have an unresponsive doctor, it can make us feel so vulnerable. Letting her know these feelings will very likely improve your communication with her.
Question from Fitz: I'm a two-time breast cancer survivor, and I'm ashamed to admit that I haven't been able to stop smoking, even though my oncologist keeps telling me to. So I've been lying to him about this. I just can't take him being angry with me on top of everything else. What should I do?
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