We know you really don't want to be here, reading about breast cancer recurrence or metastasis. If you've had breast cancer, the possibility of recurrence and spread (metastasis) of breast cancer stays with you. You may be here because you fear this possibility. Or you may be here because it's already happened.
Keep in mind that a recurrence of breast cancer or metastatic (advanced) disease is NOT hopeless. Many women continue to live long, productive lives with breast cancer in this stage. It is also likely that your experience with treatment this time will be somewhat different from last time. There are so many options for your care and so many ways to chart your progress as you move through diagnosis, treatment, and beyond.
Because there are so many options, this is a long section. You may want to read just a few pages at a time. You might find it very difficult to concentrate, think straight, and remember what you've read. That's natural when you're anxious, uncertain, overwhelmed. We'll do our best to help you find what you're looking for.
If you're already feeling stuck in the fear and you need to deal with that first, here are a few places to try right away:
- Read about managing breast cancer fears.
- Visit the discussion boards where other women who've been there are ready to reach out and help you get through the whole experience.
In this section, we'll give you the support, information, and practical tips you need to deal with breast cancer that has come back or spread. In the following pages, you can learn about:
- Where Breast Cancer Might Come Back and How to Detect It
- Find out where the cancer can spread. Learn what the symptoms and tests are for each type of spread.
- If Cancer Comes Back
- Understand why this happens and how it affects your prognosis.
- What You Can Do Now
- Learn how to gather strength, get the information you need, and put together a supportive medical team.
- Treatments for Local and Regional Recurrence
- Find out about treatments for breast cancer that has returned to the breast area.
- Living with Metastatic Disease
- Learn how to deal with the challenge of a cancer that may go in and out of remission.
- Treatments for Metastatic Cancer
- Explore the therapies for metastatic cancer. These include:
- Taking Breaks from Treatment
- Find out how to juggle quality-of-life issues with the need for treatment. Figure out when's the best time to take a break for a while.
- When Do You Stop Anti-cancer Treatment?
- Learn how to weigh all the factors before making a decision about stopping treatment
- Frequently Asked Questions About Recurrence
- Read the answers to FAQs about recurrence.
- Ask-the-Expert Conferences: Metastatic Breast Cancer
If you haven't been diagnosed with a recurrence or metastasis, but have concerns about this diagnosis, connect with others on the Breastcancer.org Discussion Board forum Not Diagnosed With a Recurrence or Metastasis but Concerned.
If you have been diagnosed with a recurrence or metastasis, connect with others who have also been diagnosed on the Breastcancer.org Discussion Board forum Just Diagnosed With a Recurrence or Metastasis, or the Stage IV and Metastatic Breast Cancer ONLY forum.
Breastcancer.org and 29 other organizations have formed the Metastatic Breast Cancer Alliance to increase our ability to help patients and improve outcomes for those living with metastatic breast cancer and their families.
An earlier version of some of this material appeared in Living Beyond Breast Cancer (Random House, 1998) by Marisa Weiss and Ellen Weiss.
The medical experts for Recurrent and Metastatic Breast Cancer are:
Jennifer Armstrong, M.D., medical oncologist, Paoli Hospital, Paoli, PA.
Jennifer J. Griggs, M.D., medical oncologist/hematologist, University of Rochester, Rochester, NY.
Marisa Weiss, M.D. breast radiation oncologist, Thomas Jefferson University Health System, Philadelphia, PA.
These experts are members of the Breastcancer.org Professional Advisory Board, including more than 60 medical experts in breast cancer-related fields.